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Where Your Money Goes

Your money helps us in a number of ways. Through our grant giving programme we can support affected individuals with the purchase of specialist equipment, adaptions around the home or to help fund any other social or medical need.

We provide grants to other organisations to help preserve and enhance vital support services. We also fund research into the disease to help find a viable treatment or cure.

Fundraise For Us

We are dedicated to making a positive difference in the fight against NP-C.

As a small charity we need your support. It is only because of your fundraising that we can continue to support families affected by this life-limiting condition; and fund research in the hope of finding a cure in the future.


Challenge Yourself. Skydive. Run.

Bag Pack. Bucket Collections.

Cake Bake. Host Events.

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