OUR STORY IN FILM

As some of you may have noticed we have been busy over the last few months working with the amazing team at CineBites on a new mini documentary focusing on the work of The Hollie Foundation, the families who inspire us and the work we do to help try and make a difference.

We can't wait to share this with you following it's release at our forthcoming ball on 13 May! We are so grateful to the families who have allowed us to invade their homes and who have shared their personal journeys with NP-C and to all those who have helped support the development of this film.

The creation on this film and the importance of fighting NP-C became even more poignant during filming by the devastating loss of children who were due to be part of the filming project - forever remembered.