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As many of our supporters know the last few weeks have been a difficult time for the Niemann Pick community. It is at times like this we see the brutal reality.

At the beginning of April 3 year old Ruby Williams lost her battle with the disease. Ten days later and in less than 48 hours of each other we lost 4 year old Zayn Slatch and 5 year old Roman James from the local area.

On 13 May 2017 the Foundation will host is 9th annual charity ball at Stadium MK - one of the most important and biggest fundraisers in our annual fundraising calender, the proceeds of which enable the Foundation to continue funding support and reseach for those battling NP-C.

We would like to annouce that this year's ball will be dedicated to the memory of Zayn, Roman and Ruby, three children who inspired and continue to inspire a community to fight NP-C.

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