As many of our supporters know the last few weeks have been a difficult time for the Niemann Pick community. It is at times like this we see the brutal reality. At the beginning of April 3 year old Ruby Williams lost her battle with the disease. Ten days later and in less than 48 hours of each other we lost 4 year old Zayn Slatch and 5 year old Roman James from the local area. On 13 May 2017 the Foundation will host is 9th annual charity ball at Stadium MK - one of the most i

As some of you may have noticed we have been busy over the last few months working with the amazing team at CineBites on a new mini documentary focusing on the work of The Hollie Foundation, the families who inspire us and the work we do to help try and make a difference. We can't wait to share this with you following it's release at our forthcoming ball on 13 May! We are so grateful to the families who have allowed us to invade their homes and who have shared their personal