As many of our supporters know the last few weeks have been a difficult time for the Niemann Pick community. It is at times like this we see the brutal reality. At the beginning of April 3 year old Ruby Williams lost her battle with the disease. Ten days later and in less than 48 hours of each other we lost 4 year old Zayn Slatch and 5 year old Roman James from the local area. On 13 May 2017 the Foundation will host is 9th annual charity ball at Stadium MK - one of the most i